tag:blogger.com,1999:blog-6208071804519639402.post2769448098677500244..comments2018-06-15T05:07:27.452-07:00Comments on Living With Phelan-McDermid Syndrome: OUR PMS STORYSlayerKathttp://www.blogger.com/profile/03583958107694148095noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6208071804519639402.post-6899916463703336932017-04-30T13:01:10.593-07:002017-04-30T13:01:10.593-07:00Thank you Laura. I won't say it gets any easie...Thank you Laura. I won't say it gets any easier but it does get 'different' ;) much love xSlayerKathttps://www.blogger.com/profile/03583958107694148095noreply@blogger.comtag:blogger.com,1999:blog-6208071804519639402.post-64113190217782521092017-04-29T18:21:46.161-07:002017-04-29T18:21:46.161-07:00Thank you for sharing your story. I am a young mom...Thank you for sharing your story. I am a young mom from Pennsylvania U.S and my son is now two he was diagnosed when he just turned one so I've been learning new things and dealing with him day by day. E has two older sisters 7 and 5 years old that really don't understand his disability and it's kinda hard to explain to them but they don't look at him any different way. Some times I just wonder were his life is going to take him what is he going to over come and what he is going to have to deal with. I know ever case is different but I search the internet day in and day out to see if any other children are walking or talking and what age did they meet these milestones. Reading this made me tear up because I see that he will be able to overcome certain challenges. And if there was one thing I could change as well yes I would love to hear him speak he has the sweetest little voice when he babbles I just be thinking how would he sound saying mom or dad. But thanks for sharing your story again it really brings smiles to other mothers faces knowing that they are not alone. Anonymoushttps://www.blogger.com/profile/03749591728101844680noreply@blogger.comtag:blogger.com,1999:blog-6208071804519639402.post-36195123744588996612016-09-13T08:41:41.338-07:002016-09-13T08:41:41.338-07:00Thank you for your comments.Thank you for your comments.SlayerKathttps://www.blogger.com/profile/03583958107694148095noreply@blogger.comtag:blogger.com,1999:blog-6208071804519639402.post-55466401099296174472016-09-13T07:27:32.433-07:002016-09-13T07:27:32.433-07:00Hi, thank-you for sharing. My beautiful 14 year ol...Hi, thank-you for sharing. My beautiful 14 year old son has Phelan-McDermid Syndrome. We were the opposite to you, in that our first was diagnosed with the syndrome. We found it very difficult and trying at most times. A feeling I've never admitted to myself then - I don't know if whether it was because I didn't want to listen or perhaps knowing if I did it may potentially break me, but in hind sight, the thought of being left alone with him, it brought about my anxiety. Of course you naturally would face this with a brave face and deal with issues as it arises. But as parents you do, well somehow I found it in me, to build your resilience and learn to adapt to your situation. Now with two more children the experience between them was like night and day. I'm not going to shy from the fact that if given the opportunity to change things in his life I would take it. Kat and Phil, I have found that with my son the older he became the less supervision required. Thank-you, for reminding us to take each stride as it comes. :)Anonymoushttps://www.blogger.com/profile/01813306042961298178noreply@blogger.comtag:blogger.com,1999:blog-6208071804519639402.post-13621741668207711932015-12-07T12:50:19.147-08:002015-12-07T12:50:19.147-08:00Hi Ross! [waves]Hi Ross! [waves]SlayerKathttps://www.blogger.com/profile/03583958107694148095noreply@blogger.comtag:blogger.com,1999:blog-6208071804519639402.post-56851895302298036162015-12-07T12:37:31.839-08:002015-12-07T12:37:31.839-08:00Thank you for sharing. My three year old nephew Ro...Thank you for sharing. My three year old nephew Ross also has Phelan-McDermid Syndrome. We are in Scotland xxAnonymoushttps://www.blogger.com/profile/08027565943496452542noreply@blogger.comtag:blogger.com,1999:blog-6208071804519639402.post-46621180438893548102015-04-02T15:21:36.354-07:002015-04-02T15:21:36.354-07:00Thank-you for taking the time to document your sto...Thank-you for taking the time to document your story <br />Margaret<br />XxxMargarethttps://www.blogger.com/profile/06767582964487650597noreply@blogger.com