TOTS 100 - UK Parent Blogs

Wednesday, 11 April 2012

More genetic results

Today I get a letter from Children's Medical Services with the results of B's latest chromosomal analysis. It's reported as 'normal'. He does not have Prader-Willi syndrome. So his excessive demand for food is more related to his behaviour and global developmental delay.

Yet another condition he does not have. The list of things he doesn't have grows longer. The frustration is overpowering.

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